Listen now (5 mins) | Finding the anatomical location for Long Covid and associated spectrum of diseases, has been challenging. Finally, a framework may be closer to explain primary pathophysiology. “It is not possible to understand Long Covid without first having a good understanding of the primary pathophysiology around Fibromyalgia, Post viral conditions and Chronic Fatigue Syndrome.”
Hey doc, thanks for the invite, I go by AllOutOnline on YouTube. We have shared some good discussion regarding long covid. Even though I am not a doctor I can only report to you my personal experience. When I had Covid back in March of 2020 the first thing to go was my breathing. My chest immediately became tight and shortly after that my vision became a little blurry. After almost 3 years of dealing with this and 9 ER visits + God knows how many doctors visits later, some things have improved and some have evolved. I was dealing with about 20 or maybe even more symptoms originally, and it was unbearable, I honestly wanted to die. It got so bad and I was bullied by so many doctors to just get the vaccine, I caved and got 1 dose of Moderna in March 2021. Immediately my symptoms improved and my breathing returned 100% for 2 days. On day 3 the tightness in my chest returned and my breathing difficulties continued. I will say, since then almost all of my other symptoms are gone, including the blurry vision, that still comes and goes but has gotten much better. The ones that remain, headaches with shooting pain, chest pain, in some cases extreme fatigue I will elaborate more on that later, a weird rash that appeared on my leg after vaccination, and breathing difficulty. The breathing difficulty improves randomly with different tools like inhalers, steroids, supplements, exercise, but usually is short lived and what feels like inflammation or a blockage returns. The gas exchange on inhale and exhale is affected. All scans so far say everything is normal. Here are some interesting things to note. On days where my breathing seems 98-100% I get hit with insane fatigue. Eating food seems to help sometimes and breathing becomes a bit easier. Trying different combinations of supplements also seems to work great for a day or two but again, this feeling of internal inflammation or blockage inevitably returns. I am now trying megadoses of B1 to see if saturation of the cells will help with any Mitochondrial dysfunction but im less than a week into it with mixed results so far. I do think microclots and proteins the body cannot easily break down keep forming and can help explain why I feel different day to day. Again, Its hard to say. All I know is I search online every day for a new lead or possibility for a treatment I can afford and I thank you for not forgetting about people like me. Looking forward to your new hypothesis and if you ever need a lab rat you know where to find me. _Bryan
Interesting to make this connection. My own ongoing symptoms for three years now could certainly be confused with either. I'm interested to learn of the neurological or psychosomatic elements too. What I mean is, is my state of mind, my non-physical self, related to the severity and longevity of ongoing symptoms? Tinnitus is getting worse. Along with loss of memory recall. Tiredness is persistent and debilitating. Maintaining a P.M.A. to life becoming more difficult (though I do still manage it for the most part). Also curious to learn if cannabis is indicated as an effective treatment (symptomatic or therapeutic) or would it be contra indicated? I know it helps with inflammation in general, but can it be helpful in reducing cell damage? Is this an auto-immune problem (cd8 t cell lymphocyte infiltration/attack) causing the damage and thus the progressive symptoms? Or is it something else? Does high dose vitamin D (calciferol) help or does it in fact make it worse by causing tcells to go on the rampage? Don't expect you to answer all these questions here but just voicing them for the record. Feels more and more likely I may not have any avenue of recovery. It's fecking depressing if I'm honest but I feel for those who've had it even worse than me, and I'm an old guy now so it's cool. It's the youngsters facing this horror show for rest of their lives that I feel sorry for the most. Thanks for your work.
Always nice to have your updates on the quest to tackle this extremely hard and complex problem. The hard work is greatly appreciated!
Thanks Dr. McM. You hit the Nail on the Head when you touched on not much money involved in researching & resolving the connection. Well done indeed you, for keeping on without much financial reward.